Back in His Arms Again
|Dr Alberto Costa and his daughter Tyche|
An encouraging article by Dan Hurley in the Washington Post describes the clinical trials of the first ever drugs to improve learning and memory in those with Down syndrome, conducted by Dr Alberto Costa and Dr William Mobley. Enthusiasm is spreading througout the research community that Down syndrome, once considered too complex to treat, and abandoned by researchers, is now the subject of clinical trials.
“A lot of us are well aware of progress we’ve seen . . . in the past five to 10 years,” said Jamie Edgin, a developmental psychologist at the University of Arizona in Tucson. Among those advances, she said, are tests designed to measure the cognitive abilities of people with Down syndrome. The development of mice with the genetic equivalent of Down syndrome, essential for studies of possible drug treatments, has been another milestone. “There’s a lot of excitement,” Edgin said.
It is a devastating irony that stunning advances in accuracy in prenatal testing AND the first clinical trials for medicine to treat cognitive impairment of Down syndrome are discovered concurrently. Sadder still is the fact that the prenatal testing is receiving vastly more press coverage.
Imagine the excitement in the press if a new cancer drug were discovered?! Well, this is how the families of over 400,000 Americans who have Down syndrome feel about this drug and its potential to change lives. Not only can it help my ten year old daughter communicate with her classmates, but it may help insure that she has more classmates who look like her.
Maybe, just maybe, if mothers who are told that their unborn baby has Down syndrome heard that there are amazing advances in treatment for the cognitive delays in Down syndrome, they would not despair of their child’s potential for a happy and fulfilling life as stated in this article.
|Servant of God, Dr Jerome Lejeune|
Of course, we who love our children with ‘designer genes’ already know their lives are wonderfully rich, full of love and learning, and giving back to their community. But if it takes more hope to help bring such gifted people to birth, then we want to be the first to spread the word. Thank you WaPo for joining us in our efforts to spread the good news.
Dr Jerome Lejeune, the French geneticist who won the Kennedy prize for his discovery of trisomy 21, the cause of Down syndrome spent his career hopeful that such treatments would be discovered, and his family via Lejeune USA continues to fund such promising research. Dr Lejeune understood the importance of such research when he said, “I see only one way left to save them, and that is to cure them. The task is immense, but so is Hope.”
Posted By Leticia to Hannah’s Tears Ministry at 8/01/2012 01:22:00 AM
Help in Time of Miscarriage
Saturday Book Pick: Karen Edmisten offers her experience and insights to hurting mothers.
I suffered interiorly for years, until my parish held a healing Mass on Feb. 2 (feast of the Presentation) for mothers who had lost a baby. It was an extraordinary evening of grace. We named our babies, writing their names on certificates which were laid upon the altar as we entrusted them to Christ. continue here
For a Baptized Child
Lord of all gentleness, surround us with Your care and comfort us in our sorrow, for we grieve at the loss of this [little] child. As You washed (Name) in the waters of baptism and welcomed him/her into the life of heaven, so call us one day to be reunited with him/her and share forever in the joy of Your kingdom. We ask this through Christ our Lord. Amen.
For an Unbaptized Child
O Lord, Whose ways are beyong understanding, listen to the prayers of Your faithful people: that those weighed down by grief at the loss of this [little] child may find reassurance in Your infinite goodness. Amen.
For a Stillborn Child
Lord God, ever caring and gentle, we commit to Your love this little one, quickened to life for so short a time. Enfold him/her in eternal life. We pray for his/her parents who are saddened by the loss of their child. Give them courage and help them in their pain and grief. May they all meet one day in the joy and peace of Your kingdom. We ask this through Christ our Lord. Amen.
For the Deceased Child
To You, O Lord, we humbly entrust this child, so precious in Your sight. Take him/her into Your arms and welcome him/her into paradise, where there will be no sorrow, no weeping nor pain, but the fullness of peace and joy with Your Son and the Holy Spirit forever and ever. Amen.
Prayer for Deceased Son or Daughter
O God, You gave us a son/daughter, and in Your wisdom and love have called him/her home to You before us. Please listen to our humble prayer: pardon his/her sins and faults, and grant that we may be reunited safely in Your Presence. Through Your Son, our Lord, Jesus Christ, we beg this of You. Amen.
This prayer could be said as a novena by a wife trying to conceive a child.
A Prayer to St. Gerard for Motherhood
O glorious Saint Gerard, powerful intercessor before God, and wonder worker of our day, I call upon you and seek your help. You who always fulfilled God’s will on earth, help me to do God’s holy will. Intercede with the Giver of life, from whom all parenthood proceeds, that I may conceive and raise children who will please God in this life, and be heirs to the kingdom of heaven. Amen.